The Truth About Being Your Sibling’s Stem Cell Donor

Andrew’s brother Joe was diagnosed with leukemia. After two relapses, Joe’s doctors offered a new treatment option: an infusion of Andrew’s stem cells. Andrew writes about the pressure that comes with potentially being his brother’s cure – and the fear that he may not be.  I was 16 when my father brought me downstairs to explain why my brother and mother were not at the …

Great Cycle Challenge Rider Guillermo Pous Fernández – Beyond the Bike

When Guillermo Pous Fernández first signed up to participate in Great Cycle Challenge (GCC), he never predicted that he’d eventually raise tens of thousands of dollars each year — he just enjoyed cycling. Thanks to a GCC Facebook ad in 2017, Guillermo learned that he could ride his bike while making a difference. GCC is an annual cycling challenge that dedicates its funds to Children’s …

Six funding partners unite to defeat this formidable childhood cancer

If we want to defeat osteosarcoma, a formidable bone cancer, we must put a powerful force behind research. That’s why CCRF’s Zach Sobiech Osteosarcoma Fund is proud to unite with five funding partners to back The Fight Osteosarcoma Together (FOT) Super Grant, a new three-year, $1.5 million dollar grant to fight recurring osteosarcoma.

Developing a new way to stop the most aggressive leukemia

With support from an Accelerating Impact for Hard-to-Treat Cancer Award from Children’s Cancer Research Fund (CCRF), University of Virginia researcher John Bushweller is pursuing an innovative new way to treat this devastating disease. Bushweller has found that blocking the MLL protein from binding to DNA stops leukemia cell growth completely — like corking a bottle so that nothing can spill out. Now he and his team at UVA Cancer Center are developing drugs to disrupt the DNA binding process.

Paying It Forward – Jessly’s Story

When 5-year-old Jessly’s mom, Debbie, started noticing that her daughter wasn’t meeting standard developmental milestones as an infant, she had a feeling something wasn’t right. Though the possibility of a tumor briefly crossed her mind, Debbie never considered childhood cancer would become the family’s reality.  “We thought that this is something that happens to other people,” she said. “Not to us.”  Just before her first …

Crowning Compassion: Mrs. Minnesota Spotlights CCRF

Brandi DeVries was crowned Mrs. Minnesota America 2023 in June and has chosen CCRF as her organization to highlight throughout the next year. On Aug. 26, DeVries will take CCRF to the big stage when she competes in Mrs. America 2023 in Las Vegas, Nev.

Kimber’s Story – On Her Own Path

When Kimber’s right leg started dragging, her mom, Tiffany, had a gut feeling that this was serious – Tiffany and her husband, Kolton, put Kimber in the car and drove to the emergency room. On the way there, a scary thought popped into Tiffany’s head – could this be a brain tumor?

Great Cycle Challenge – Riding for Tim and JR

There’s a saying that goes, “People will never truly understand something until it happens to them.” For Mary, this was an unfortunate reality that hit her when her adult nephew was diagnosed with osteosarcoma two years ago. The love Mary has for children is incomparable, she strives to help them in as many ways as she wants them to experience a “happy, carefree childhood, not …

How one boy’s cells could power new treatments for ETMR

As young Jonah fought embryonal tumor with multilayered rosettes (ETMR), a very rare and aggressive pediatric brain tumor, he returned to the operating room at Weill Cornell Medicine Brain & Spine Center again and again. But the tenacious tumor kept coming back — and pediatric neurosurgeon Jeffrey Greenfield, MD, PhD, recognized the opportunity that presented on the laboratory bench.

Looking Through a Window – Finley’s Story with Leukemia

Four-year-old Finley isn’t used to silence, even as the introverted twin. At home, he lives with his energetic twin sister named Emerson, his parents, Devan and Becky, three cats and three dogs. “It’s kind of like a mini zoo, but we like it that way,” said Becky. So, when Finley found himself in the hospital Facetiming his sister, whom he’d never been without, it made …

Callen’s Story: Rare Leukemia and the Promise of a Pool Day

Callen’s mom, Tori, describes her 2-year-old son as a sour patch kid, “But when he’s sweet,” she said, “he’s really sweet.”  The compassion he’s shown her throughout his acute myeloid leukemia (AML) diagnosis, for example, is something she’ll hold onto for the rest of her life. “Whenever I get into a little funk and I start crying because I’m sad over this, he sits up, …

CCRF welcomes new leader – Elizabeth C. Allen

Children’s Cancer Research Fund is proud to announce that Elizabeth Crippen Allen will join the organization as Chief Executive Officer. Elizabeth comes to CCRF from Twin Cities PBS (TPT), where she served as Chief Revenue Officer, overseeing the development and implementation of organizational strategies to achieve TPT’s revenue goals. She is a dedicated leader with executive experience in both for-profit and non-profit organizations, who is …

Kylie’s Story – Fighting Rhabdomyosarcoma

At 6-year-old Kylie’s birthday party, cancer wasn’t on anyone’s radar. Her mom, Kirsten, noticed she was looking tired and lagging behind her friends a bit as they chattered away on the way into the movie theater, but she didn’t think much of it at the time. Today, though, she remembers it as the very first sign that something ominous was on the horizon.    Over the …

Augmented Reality Teddy Bear Keeps Brice’s Memory Alive

Above: Chris and Christine McArdle with their daughter, Cora, and Brice Bear, a teddy bear representing their son Brice, who passed away from cancer. On April 21, Chris McArdle took the stage at Dream, CCRF’s annual gala, and spoke about his son, Brice, who passed away from a brain tumor when he was just 17 months old. Sitting on the podium while Chris spoke was …

Raising Hope for Kids at Camp Norden

Jam Hops is an organization that focuses on building the character and self-esteem of children through fun, safe physical activities. Their mission aligns with that of Children’s Cancer Research Fund (CCRF), which is dedicated to funding lifesaving treatments and research for children with cancer along with funding programs that enhance healing and care for families. Because of this mission alignment, Jam Hops decided to host …

Streaming for a Cause

In a world where every child should have the opportunity to grow up healthy and happy, childhood cancer is a devastating reality that affects thousands of families each year. But for one Twitch streamer fighting cancer herself, making a difference for children with cancer has become a passion and a mission.

Paving the Way For Better Care

For children with cancer, clinical trials can be a source of hope. By participating in a clinical trial, children can be part of the process of finding new treatments and therapies for their disease.