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Ella had a very aggressive form of acute myeloid leukemia, and neither of her siblings were a marrow match. Even after the transplant, she had only a 10% chance of making it past the one-year mark. But thanks to Cody’s whim decision in college to donate marrow, Ella was able to participate in his wedding as one of their flower girls three years after her transplant.
Humbled. Hopeful. Loved. Those are just some of the emotions the family of Nicholas Cisewski feels every year during the Nicholas Cisewski Memorial Golf Tournament in Minnesota. The tournament recently celebrated its 10th year of converging on the green in Nick’s honor, raising nearly $20,000 in support of childhood cancer research. Throughout Nick’s 14 years of life, he was “a kid that everyone knew,” his …
It’s hard to believe we’re already two months into my new role as CEO of Children’s Cancer Research Fund (CCRF)! These initial weeks have been a whirlwind filled with optimism and hope, and I’m excited to share my vision for the future of CCRF with you. First and foremost, I want to acknowledge the terrifically talented group of individuals who make up the heart and …
Using The Fight Osteosarcoma Together (FOT) Super Grant, funded in part by the Zach Sobiech Osteosarcoma Fund, Dr. Grohar will spend three years leading a research team to investigate a family of genes called MYC. His larger goal is to identify targeted treatments for osteosarcoma patients whose MYC genes have gone awry.
In 2006, Mary, a strong and talented track runner, was slated to head off to her first year of college. She visited her doctor for the required physical check-up that was standard. But this exam turned out to be far from routine, and it would forever change the lives of Mary and her family.
Children’s Cancer Research Fund is dedicated to making a positive impact in the world of childhood cancer, and part of that looks like Camp.
Andrew’s brother Joe was diagnosed with leukemia. After two relapses, Joe’s doctors offered a new treatment option: an infusion of Andrew’s stem cells. Andrew writes about the pressure that comes with potentially being his brother’s cure – and the fear that he may not be. I was 16 when my father brought me downstairs to explain why my brother and mother were not at the …
When Guillermo Pous Fernández first signed up to participate in Great Cycle Challenge (GCC), he never predicted that he’d eventually raise tens of thousands of dollars each year — he just enjoyed cycling. Thanks to a GCC Facebook ad in 2017, Guillermo learned that he could ride his bike while making a difference. GCC is an annual cycling challenge that dedicates its funds to Children’s …
If we want to defeat osteosarcoma, a formidable bone cancer, we must put a powerful force behind research. That’s why CCRF’s Zach Sobiech Osteosarcoma Fund is proud to unite with five funding partners to back The Fight Osteosarcoma Together (FOT) Super Grant, a new three-year, $1.5 million dollar grant to fight recurring osteosarcoma.
With support from an Accelerating Impact for Hard-to-Treat Cancer Award from Children’s Cancer Research Fund (CCRF), University of Virginia researcher John Bushweller is pursuing an innovative new way to treat this devastating disease. Bushweller has found that blocking the MLL protein from binding to DNA stops leukemia cell growth completely — like corking a bottle so that nothing can spill out. Now he and his team at UVA Cancer Center are developing drugs to disrupt the DNA binding process.
When 5-year-old Jessly’s mom, Debbie, started noticing that her daughter wasn’t meeting standard developmental milestones as an infant, she had a feeling something wasn’t right. Though the possibility of a tumor briefly crossed her mind, Debbie never considered childhood cancer would become the family’s reality. “We thought that this is something that happens to other people,” she said. “Not to us.” Just before her first …
Brandi DeVries was crowned Mrs. Minnesota America 2023 in June and has chosen CCRF as her organization to highlight throughout the next year. On Aug. 26, DeVries will take CCRF to the big stage when she competes in Mrs. America 2023 in Las Vegas, Nev.
Children’s Cancer Research Fund is proud to announce that our family support programs will now be known as The LeJeune Whole Family Wellbeing Programs, named in honor of the incredible generosity of Larry and Jean LeJeune.
When Kimber’s right leg started dragging, her mom, Tiffany, had a gut feeling that this was serious – Tiffany and her husband, Kolton, put Kimber in the car and drove to the emergency room. On the way there, a scary thought popped into Tiffany’s head – could this be a brain tumor?
There’s a saying that goes, “People will never truly understand something until it happens to them.” For Mary, this was an unfortunate reality that hit her when her adult nephew was diagnosed with osteosarcoma two years ago. The love Mary has for children is incomparable, she strives to help them in as many ways as she wants them to experience a “happy, carefree childhood, not …
As young Jonah fought embryonal tumor with multilayered rosettes (ETMR), a very rare and aggressive pediatric brain tumor, he returned to the operating room at Weill Cornell Medicine Brain & Spine Center again and again. But the tenacious tumor kept coming back — and pediatric neurosurgeon Jeffrey Greenfield, MD, PhD, recognized the opportunity that presented on the laboratory bench.
Four-year-old Finley isn’t used to silence, even as the introverted twin. At home, he lives with his energetic twin sister named Emerson, his parents, Devan and Becky, three cats and three dogs. “It’s kind of like a mini zoo, but we like it that way,” said Becky. So, when Finley found himself in the hospital Facetiming his sister, whom he’d never been without, it made …
Callen’s mom, Tori, describes her 2-year-old son as a sour patch kid, “But when he’s sweet,” she said, “he’s really sweet.” The compassion he’s shown her throughout his acute myeloid leukemia (AML) diagnosis, for example, is something she’ll hold onto for the rest of her life. “Whenever I get into a little funk and I start crying because I’m sad over this, he sits up, …
