Ewing sarcoma is dubbed “a spotted zebra” for being rare and unpredictable. Kids like Griffin and researchers from the University of Minnesota hunt for answers to outsmart this elusive foe.
From Patient to Provider: Luke’s Story
Luke, a physical therapy student at the University of Minnesota, can tell when someone notices something is different about his leg. He says he can almost see the words on the tip of a person’s tongue. “I don’t mind it, I’m happy when people just ask,” he says. An amputee since he was 9 years old, Luke says he has the short version of his …
A new normal: two families navigate back-to-school after cancer
Back-to-school time can seem so ordinary, until your child receives a cancer diagnosis. For kids like Bella and Kayden, school can look very different from one child to the next.
From Lab to Lifeline: Zach’s Movement Builds Momentum in Osteosarcoma Advances
12 years of progress and a look to the future – the Zach Sobiech Osteosarcoma Fund at CCRF has raised more than $4.4 million for safer, smarter treatments and hope for kids with cancer.
Rebounding from Cancer: Jimmy’s Story of Hope and Hoops
Jimmy understands cancer more than most kids his age. A genetic condition led to cancer not once, but twice. His story shows just how heavy cancer is – and why no child should have to carry it.
Research in Bloom: A Season of Survivorship
Children’s Cancer Research Fund invests in projects that look beyond kids simply surviving cancer – to futures of long-term health, healing and happiness.
Bryleigh’s Story
Meet Bryleigh, a small but mighty child at the forefront of advancing B-cell acute lymphoblastic leukemia cancer research.
Jack’s Story
High school swimmer Jack refused to let Hodgkin lymphoma derail his competitive career. While undergoing chemotherapy, he not only continued swimming but qualified for state competitions, inspiring both teammates and rivals. Now in remission, Jack is determined to advocate for childhood cancer research while pursuing his athletic dreams.
Paving a Clearer Path for Kids Like Nat
Because of your support, researchers are on their way to giving kids with osteosarcoma (bone cancer) a clearer, more effective treatment path. Dr. Jaime Modiano and his colleagues at the University of Minnesota are developing a groundbreaking blood test to differentiate between aggressive and less aggressive forms of osteosarcoma. Inspired by Nathalia Hawley’s story (below), he aims to create a personalized medicine approach that helps …
Kenedi and Kendal’s Story
Identical twins Kenedi and Kendal shared everything – including an unimaginable diagnosis. At just 3 months old, both girls were diagnosed with AML, a rare type of childhood cancer.
Fritz’s Story
When 9-year-old Fritz went to the dentist for what seemed like a routine tooth pain, no one expected it would change his life forever. What the dentist discovered was actually a rare tumor – leading to a diagnosis of Ewing sarcoma in his jaw, representing less than 1% of all cases of this already rare childhood cancer.
Tenzin’s Story
Tenzin, a 10-year-old leukemia fighter and Junior Black Belt, continues his treatment with unwavering resilience.
Kayden’s Story – Fighting Leukemia
Kayden’s parents took him to the emergency room for pain and unexplained bruising. Finally, one of the emergency room doctors called an oncologist, who ran a test that showed Kayden had signs of leukemia. The world of cancer treatment wasn’t made for kids – but Kayden was suddenly a part of it.
Jackson’s Story – Ready for Anything
Jackson’s mom Martine has a “go bag” packed at all times. Whenever they get home, she washes everything, packs most of the items right back up and sits the bag on the counter, just in case. This uncertain way of living, having to be ready to head to the hospital at any time, is how Jackson and his family have been living since July 2023, when Jackson was diagnosed with Ewing sarcoma, a type of bone cancer.
One of a Kind – Lila’s Story
Medical challenges are not new territory for 14-year-old Lila and her family – she had a stroke before she was born, she is non-verbal and is only fed through a g-tube. She has been diagnosed with Quadriplegic Cerebral Palsy, meaning she has a hard time moving her arms and legs, as well as Dystonia, Scoliosis and more. So when leukemia was added to the list, Sarah was terrified – childhood cancer is already so rare and hard to treat, and Lila’s other diagnoses made this situation unique.
A Little Warrior – Sloane’s Story
You might think it strange that Allison cherishes the opportunity to watch her three-year-old daughter, Sloane, throw a tantrum. It’s something most parents would roll their eyes at – a little kid getting wildly upset over something silly. But for Allison, every typical toddler struggle is a reminder that right now, Sloane is healthy. And after what Sloane has been through, her family doesn’t take that for granted.
A Battery-Operated Heart – Megan’s Osteosarcoma Story
When 8-year-old Megan was diagnosed with osteosarcoma, she asked her mom what osteosarcoma was – she’d never heard the word before. Her mom said, “It’s something we don’t want, but it’s something we’re going to fight.”
The power of seed funding: CCRF-funded leukemia screening project lands NIH grant
Erin Marcotte, PhD, MPH, and Heather Nelson, PhD, MPH, of University of Minnesota are seizing the opportunity to turn small things into big hope for the future of childhood leukemia. In 2016, the pair received a grant from Children’s Cancer Research Fund (CCRF) to develop a new method to predict which children are at risk of developing acute lymphoblastic leukemia (ALL) — and perhaps one day prevent it.

















