Breaking the News – A Doctor’s Perspective

Imagine for a moment that you’re a pediatric oncologist. You’ve had over 20 years of education and you’ve passed dozens of tests and completed hundreds of hours of training to get you to this point in your career. But right now, you have to do something that you’re never fully prepared for. Your hand is on the door handle. On the other side of that …

Cancer Parents’ Advice to Themselves

If you could go back to the day your child was diagnosed, what advice would you give yourself, knowing what you know now? This is the question we asked a group of cancer parents through a Facebook discussion facilitated by Momcology, a national peer support and community-building foundation for pediatric cancer families and partner to CCRF. In the parents’ answers, we noticed a few themes. …

Gaming for Emotional Health

As Sheri Sobrato Brisson led one of her many support groups for kids and teens with chronic health issues, she thought back to how she felt when she was a young adult recovering from treatment for brain cancer. She felt misunderstood by those closest to her, especially her peers. She remembers being out of touch with how she was feeling at the time, and when …

Sheri’s Story – Digging Deep and Giving Back

Most adults in their early 20s have their whole lives to look forward to – careers, relationships, families and dreams are all still on the horizon. But when Sheri Sobrato found out at age 24 that she had a brain tumor, the image of a future ahead of her vanished. She was told she might have just months to live. Sheri underwent aggressive treatment to …

Jocelyn’s Birthdays – Then and Now

This post was written by Kayla Dickhoff, who lost her daughter Jocelyn to cancer in July 2013. How have birthdays changed since losing Jocelyn? After thinking about this, I realized the answer is quite complicated and lengthy. Not only has her birthday changed, but birthdays before and after her death have changed as well. On June 12, 2019, we will celebrate what should be Jocelyn’s …

Memories in a Suitcase

This piece was written by Joelle Oliver, mother to Patrick, who was diagnosed with rhabdomyosarcoma in November 2018. Originally from Minnesota, the Oliver family had moved to Indonesia before Patrick’s cancer diagnosis made it necessary for them to return to the United States for treatment. As I glance at the suitcase in the corner each time I enter the room, a flood of memories runs …

Logan’s Story – Persevering Through Relapse

Six-year-old Logan sits quietly in the back seat of his dad’s car, watching his favorite show, Thomas the Tank Engine. Outgoing and polite, Logan makes friends easily, is a hugger, and loves to flash his big, toothy grin. While Logan watches his favorite train characters on his iPad, his dad, Eric, recounts from the front seat the day when Logan’s and his family’s lives changed …

Alizabeth’s Story – Full of Sparkle

Two years ago, Carrie and Steve already had their hands full. As working parents to five daughters and owners of a cattle ranch in central Minnesota, they were a busy family, but happy that way. But when their youngest, Alizabeth, started feeling sick, everything changed. Carrie remembers the moment clearly – she was putting Alizabeth’s long blonde hair up in a ponytail when she noticed …

Listen to the Healing Happen

This essay was written by Gracie Bahr, a 17-year-old cancer survivor who found comfort in music therapy.  The sunrise begins to peek through the grand window of the hospital room and shines on a young child. As she wakes up, you notice that she is a feeble, thirteen year old girl. This is the girl’s third year treating for cancer. She is now trying something …

Carson’s Story

On an otherwise normal morning in July, 5-month-old Carson woke up crying – hard. Kelly, Carson’s mom, did everything she could to comfort him, but Carson was inconsolable and soon started vomiting. Kelly took him to pediatric urgent care, where doctors did an x-ray and then sent Carson and Kelly to the emergency room. Carson was admitted that night, since it still wasn’t clear what …

The Healing Power of Music Therapy – Gracie’s Story

Seventeen-year-old Gracie has always been an athlete – her coaches and teammates recognized her as a hard worker, and she was usually among the first to finish the difficult running drills that kept her in shape to play basketball. But when she started slipping from the front of the pack to trailing her teammates, she had an inkling that something bigger might be at play. …

Remembering Nathalia

Last week, we lost a close friend and fearless advocate. Our dear friend Nathalia passed away peacefully in her home on April 19 surrounded by her family. She was 15 years old. Nat was diagnosed with osteosarcoma, bone cancer, in July of 2016 when she was just 12. When we were introduced to her in 2017, we met a girl wise beyond her years and …

Two Years

This piece was originally posted by Tabitha Radermacher on the CaringBridge page for her daughter, Bella, who was diagnosed with stage IV hepatoblastoma on April 28, 2017. If you would have told us two years ago that our life would be flipped upside down and turned inside out to the point where all we breathe and think about is all the medical lingo and exams, …

Patrick’s Story – Cancer, Part Two

Chicago, Illinois When Patrick started getting frequent nosebleeds the summer before senior year, he figured they were just from allergies. But when the nosebleeds threatened to interfere with his last season of high school football, he scheduled a simple surgery to get the nosebleeds taken care of. But after his surgery with an ear, nose and throat specialist, he was told it wasn’t that simple. …

Looking for the Finish Line

This piece was originally posted by Kristy Westrom on the CaringBridge page for her son, Liam, who was diagnosed with T-cell acute lymphoblastic leukemia in May 2018. You know that feeling when you’re so exhausted that you just don’t know if you have it in you to keep going… but you do it anyway? There are a few times that I have truly felt like …

“Helping is an Honor” – Angie’s Care Partners Story

(Above): Angie with Catherine in 1998, when Catherine was in treatment for cancer. Very few people understand just what a family goes through while their child is battling cancer – the intense ups and downs, the loneliness, the stress of fighting a scary disease in an unfamiliar place. It’s a small community made up of only those who have seen it, up close. Angie Dahl …

MacKale’s Step Forward

Michigan Childhood cancer can force us to make decisions we never imagined we’d face – decisions that, for good or bad, will alter our lives forever. Below is the story of 16-year-old MacKale, who made one of those unthinkable decisions when osteosarcoma threatened to take his leg. MacKale’s mom, Marsha, tells the story of how her resilient son turned a difficult loss into a major …

Busting Myths about Childhood Cancer Research

There are plenty of myths surrounding childhood cancer research – how it works, how fast it moves, and how much funding it needs to move forward. CCRF wants to bust some of these myths so you can have a better understanding of childhood cancer, the researchers searching for better treatments, and the progress your donation can make possible. Myth: Childhood cancer research is incredibly slow. …